confuzzledwife's tags:

The page you were looking for no longer exists

something that had been bothering me a lot- and I can't shake it.

 

I used to have a MySpace account, the reason for it was to keep in touch with out of state relatives and get to know other families with children who have Autism.

 

I got to know this one woman, a mother to 4 children, one who had Autism.. she lives in another state and we would send messages back and forth to one another mostly relating to Autism- my son was newly diagnosed at the time and I was going through a lot of hard times and she was pretty supportive and offered some kind words in the beginning. 

 

After a few months I remember I was reading her blogs and they were filled mostly with complaints about her son with Autism- and how difficult he had become- how she wanted a "normal" life, things of that nature..  and although I understood her frustration, I didn't feel right about how she went on and on complaining about her child- one blog stuck out in my mind so much that I shared it with some family members of mine- she said "today my son took his diaper off and pooped on the carpet and I was livid!  He left a huge mess and I am tired of cleaning up after him- When oh WHEN is this going to end!!!!".. I thought to myself maybe she needs more support, maybe she needs more education on Autism, maybe she needs to be a bit more understanding that her son isn't like her or her other "normal" kids- he doesn't know any better-

 

It just stuck with me .. I read blogs from the entire year and noticed her blogs from the month of May 2007 were all about complaining about her son with Autism- not venting, but complaining.

 

Then one day back in June she blogged that her son died earlier that day... she said she was in another room changing her younger child's diaper,  and that her Autistic son ran out the door and drowned in the backyard pond.  I was shocked, I mean, if that were my son I wouldn't be blogging the same day about it- maybe it's me, I don't know- but it disturbed me quite a bit..  the next day she continued blogging about her son but her story changed- she said that she was in another room with her husband and 3 other kids hooking up TV wires when he escaped..  but what really got to me was that she was complaining that she didn't have money to bury him and that she would like donations- 

 

She didn't talk about her loss, but money- she said "we were lucky they didn't make us pay back his social security for this month".. this was days after her 5 year old son's death-

 

The biggest thing was that she posted pictures of her son, dead- covered in mud when he was pulled from the pond on her myspace page- I thought to myself, who would bring out their camera at a time like this?   then later she posted pictures of him in his casket- and she made a video that is still on her page, she says she wants to warn other parents what could happen to them...

 

She said her husband pulled his lifeless body from the pond and there she was with her camera?  Please- somebody tell me it's NOT me...

 

I am not an insensitive person- I understand everyone deals with death differently, I get that.. but this seemed odd to me..  then another mother messaged me and brought the same concerns I had and how she erased all her blogs complaining about her son... and she said she was suspicious of the child's death- well so was I.  I don't know...  the video is still available to watch- if I'd known there were pictures of this child covered in mud and later in a casket I wouldn't have watched... now I am having nightmares over this-   I wish I never saw the pictures..  maybe I'm overreacting.   

 

I am posting the video- but be warned..it's pretty graphic.. there is now a warning which wasn't there before about how graphic it is.

 


del.icio.us Digg reddit StumbleUpon

Comments

  • secretlife said on Oct 11, 2007....
    i didn't watch the video-
    something doesn't sound real with the whole thing.
    i'm suspicious that this was a real person who had lost a son.
    i'm thinking she was looking for money.  and that it was a scam.
     
    either way, this is a person i would not want in my life, and i'd simply separate myself in every possible way.
  • confuzzledwife said on Oct 11, 2007....
    secret-
    I made sure to verify her story and found a real news link to it - here
    I haven't had contact with this lady since May because of a lot of her complaining about her child.. I mean, on one hand I feel terrible.. but something just doesn't seem "right" to me..
  • quietone said on Oct 11, 2007....
    confuzzeld ~ OMG this IS disturbing.  stay far far away from this!  there is something very wrong with this picture. How sad for that little boy.
  • quietone said on Oct 11, 2007....
    I don't know what it is, but it makes me feel strange reading that news clip even...almost a "haunting" feeling.  I cannot even imagine thinking of taking pictures of my child...any child that just died so tragiclly. 
  • confuzzledwife said on Oct 11, 2007....
    quietone I agree with you.. it is very haunting.. that's the exact word I would have used to describe the whole thing.. it gives me chills...
  • tunamelt said on Oct 12, 2007....
    this IS disturbing!  none of this seems right IMO
  • Tink11464 said on Oct 25, 2007....
    This is bizzare - I mean really, who would go and grab a camera to take pictures of their son after he was pulled from a pond that he drowned in??
     
    I could understand taking pictures in the casket - as I know people who have done this - but kept the photos private!
     
    But to make these public and to include the pond one - - is appalling to say the least. Maybe they are mental? Maybe the family should be looked at? I mean how do you complain about this child who is such a bother, a burden - and then all of the sudden he's gone? Just my opinion.
  • Tink11464 said on Oct 25, 2007....
    Just found this link off of her myspace page - she was trying to win a headstone?? And she won!!!
     
     
    I think there is definitely something wrong with this family!!!
  • vacantmind said on Oct 25, 2007....
    I am going to agree here. This is disturbing. You and I have a very unique view to the world. We have the opportunity to see it through the eyes of an Autistic child. There is moments of total frustration and then there are moments of quirky behaviors that somehow become a part of your everyday life. Lots of parents complain about their children. They are a source of stress and frustration but every moment isn't that way. They are also a source of joy and humor. With all that being said. I would never take a camera to snap photos of a child that was just lost, especially my own. Someone would be carrying me home and I would weep for days on end for that child. The thought of losing any of my kids makes me well up. I think it is sick to have this video out there. I think it is a play on people's emotions.
  • confuzzledwife said on Oct 25, 2007....

    Tink and Vacantmind-

     I just went to that wish page, and saw what she wrote.. she said her son met Jesus that day and they were denied life insurance because he had Autism, and said it's not their fault.. and went on and on about how they are living on one income- and of course money problems.

     I disagree it's not their fault- they knew for some time their child had Autism.. she wrote MANY blogs on safety and Autistic children.. talking about this lock or that lock- she stated in one blog that she knew her child had no fears or sense of understanding danger, yet- she left her doors open and unlocked and knew there was a pond in her backyard?   There was no fence, no attempt of protecting this child in any way-  I couldn't afford a fence for awhile either- and I know it's expensive.. so what I did until I could afford one was used chicken wire around my yard- sure it looked stupid but I didn't care about looks, just safety!!

    I am not buying her story that this was an accident, because her story changed too many times.. first she was home alone and was changing her other child's diaper, the next day she said she and the rest of the family were hooking up TV wires.. and he somehow escaped.

    As soon as I got my son's diagnosis, I bought door and window alarms (super cheap and super loud when a door or window is opened), and I installed a $2.00 heavy duty slide latch lock way at the top of my door...

    Parents with Autistic child KNOW this stuff.  She knew too.

    Snapping pictures of my child who just drowned and is covered in mud would be the LAST thing I would do, as Vacant said- and I, too, would need to be carried home because I think I would be a basket case. 

    Thanks for reading.

  • vacantmind said on Oct 25, 2007....

    My son is now 12. I never had to do locks or alarms. I was always over him or his father was. We were way to paranoid to leave him alone. Luckily, he isn't one for wandering off and he has grown into a social creature. When you have a child with autism you learn to adapt, learn their limitations, and learn how to guide them. I think she failed her son. I don't like to say that about any mother but she knew with his young curious mind and his autism he was more likely to get into trouble. Accidents happen but this was pure ignorance.

     

  • confuzzledwife said on Oct 25, 2007....

    vacant-

    that's awesome that your son has grown into a social creature !!  That is encouraging for me to hear :)

    I just wanted to clarify, I don't let my son out of my sight.. - he's too willing to run and take off!!!  He just turned 4.  He often plays with the locks on the door - I am right there though.. and he has started to open windows, which is why I added the extra lock and alarms.. and bars on his bedroom windows.. I also put a safety gate at his bedroom door - because I worry that he'll wander at night.. for me all the locks and alarms are just an added safety precaution for me..  and thankfully I was able to put a fence outside... I have read one too many horror stories mostly related to children with Autism.. maybe I am a bit over protective, or paranoid.. but that's my son, and I have to protect him. 

    I realize nothing is a guarantee, and accidents happen.. I just pray everyday I am doing the right thing-

    You're right, as a parent you learn what your child's limitations are...

    and I agree, that was ignorance on that mother's part!!

  • vacantmind said on Oct 25, 2007....

    I wasn't trying to imply  anything. Just that my paranoia was sufficient. I was constantly hovering him. I am lovingly called Over-protective Psycho Mom (OPM) by my children, apparently I have a calming effect like the drug as well.

    Autism is a hard disorder to judge. What works for one child may not work for another. My son was very vocal once he learned I would react. He loved listening to Enya and sometimes, even though he is metal head, he still loves the soft sounds. You may run across something someday that just flips a switch with him. When Alex became fascinated with flashlights, I became fascinated with flashlights. It was an opportunity to connect. We learned what everything was called inside and out. He then moved onto the rain. So, we watched that together for as long as it lasted.

    My only advice is take those moments and build on them. Whatever he is interested in, you are now just as curious. Take it apart, rebuild it, buy a new one, whatever works. We even painted our own flashlights. Made all sorts of weird colors light up as well. I tried explaining this to another mother before and this is the best way I came up with to state it. Autistic children don't look for a connection to the world, you are responsible for finding it for them.

    I feel like my son is a success story. He is in a mainstream classroom in the 7th grade. Everyone in the school knows him and has incorporated some of his quirkyness into their own self expression. He does alot of hand flapping when he is happy or really upset. That is now the fad in his Jr. High. We have always strived to make our home a place where he could be himself and be accepted. It is nice to see the rest of the world make the same effort.  

    Good luck with your son and if you ever need to talk or just want someone who gets it. Let me know.

  • hotaka said on Oct 30, 2007....
    I didn't watch the video either. I don't know what to think of the whole thing. It seems all so weird and the mother doesn't seem right in the head either. Was it just a fake blog to get attention? Than again, there are weirdos out there who might actually think like her.

Comment on "disturbing"

disturbing death Autism sad bizzare morbid (Click to add tags below)

(Separate tags using commas, for example: New York, dating, vegetarian)
Comment Anonymously

A tribute to a family member...
finding death...
Autism has an array of "classic" symptoms, with a profound impairment of social interaction skills perhaps being the most familiar to the layperson. Parents often notice something is not quite right with their child, often as early as infancy....
Is your child falling behind in grade level expectations? Not recognizing words, or trying to sound out every word he comes to? Unable to blend sounds into words? Reversing, substituting, adding, or omitting sounds? These are common problems that fac...
Perhaps one of the Problems with the dyslexia adult learning disability is that instructional programs frequently teach to the majority, ignoring different kid and adult learning styles. Dyslexic people are typically really bright, but are labeled as...