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As I have mentioned before, my three year old has always had a severe case of gastroesophageal reflux disease. It's a common problem but has a whole list of problems that can come along with it. One problem associated with it is something called Sandifer Syndrome.  When it happens in public, it attracts quite a bit of unwanted attention....
 
My father was flying in last night, so my siblings, and all our children made the trip to greet him and take him to dinner. We are all used to his behavior while eating and my family doesn't give it a second thought. But, taking him out to eat is not something I like doing very often. I invited my husband to come along help me, which turned out to be the smartest thing I did all night!
 
Shortly after the appetizers arrived, my son started shaking. It isn't a small little twitch that might go unnoticed by neighboring tables. He stretches out with an arched back and starts shaking uncontrollably. After a minute of shaking, he spits the food out and becomes quite irritable.
 
The first time, the food ended up on a spare plate. The second time, I caught it in a napkin. The third time, he was sitting on his father's lap and he caught it in a napkin. But, the fourth time he was sitting on my lap picking the croutons out of my salad and must have got a pice of lettuce with it by mistake. When he spit it out, he spit it right back into my salad!! Regardless of how used to it we are, that is enough to turn my stomach a time or two!! I pushed my plate away, cleaned his face and continued on with the conversation.
This continued throughout the main course until he had finally gotten frustrated enough that he refused to eat.
 
My husband whispered something to the effect of another lovely night out. Hey, it's not your salad he's spitting in!! He doesn't actually spit, he opens his mouth and lets it fall out so you don't hear him spit. Either way, it's quite disgusting. But, unless you were staring at him already, you probably wouldn't ever notice him doing it. I didn't know anyone sitting at the other tables had noticed it.
 
But as we got up to leave, I noticed a woman staring at us. And as I looked around, I noticed several people staring at us. I was half way to our car before it occurred to me. They thought we were just continuing to eat while our son was having seizures!! And if they were watching him long enough, they would have noticed him spitting food out!! So, not only were they appalled by such poor parenting, they were disgusted by the chewed up food and it most likely ruined their dinner! I'm sure they didn't have much of an appetite after witnessing something like that.... then I felt bad....really bad.
 
So, how do you ruin a perfectly good night? Eat at the same restaurant as us!


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Comments

  • silverwhisper said on Jul 27, 2007....
    jeez, MI: sandifer syndrdome must be awfully confusing to folks, and yeah, that's gotta be what everyone else was thinking!

    i gotta say, i'd probably have some trouble eating that salad, too.

    wait--your husband was there. ?

    ed
  • mirrorimage said on Jul 27, 2007....
    ed,  I rarely take him to restaurants because of it. It isn't something that we don't even really think about, but I hate knowing we spoiled someone elses evening out!
     
    He was.... I have asked him to come along quite a bit over the last two weeks. He went to my sisters wedding and has spent quite a bit of time with us lately. I'm not quite sure what will happen there but it has been nice every now and then to have him around. We both knew it would be a complete nightmare to try to do all of this with just one parent around....especially the wedding and reception.
  • silverwhisper said on Jul 27, 2007....
    i read on the linked article that they don't know what causes sandifer's and i know that's gotta be really tough on you

    about your husband: so long as you don't walk into anything without looking carefully...i do worry about that.

    ed
  • botoni said on Jul 27, 2007....
    I think the little fellow is damn fortunate to have parents who cope so well. He ll do fine as he grows. Bless you mirror.
  • mirrorimage said on Jul 27, 2007....
    ed, i think they are on the right track thinking it has something to do with reflux even though it could be from anything. But, his started the first time he had baby food...It only happens when he eats and seems to depend on the food.
     
    I think right now, I'm just trying to get by which sounds really bad. But, I think he is doing the same thing. We spend just enough time together to know we aren't ready for the full reconciliation.... I'm not sure what will happen.
     
    Botoni: I am glad most of the problems are more of a nuisance than serious. But, he is a proud graduate of the hershey medical center food clinic! Who would have thought my child would need therapy to eat? Not help getting it to his mouth....pep talks to keep it in his mouth and swallow it. His older brother has enjoyed it though... If he doesn't eat that can I have it? Guess that explains why one is 86 lbs and the other is barely 30.... Oh well....can't have it all i guess!
  • D6fer said on Jul 27, 2007....
    wow moms....that sounds frustrating....my girls have digestive problems as well....lactos intollerant I think....we never had them checked....although lately one of my daughters has been taking a suppliment that is supposed to straighten out your digestive system....seems to work pretty good....I get it from a private nutritional company....they a lot of things that work pretty well to help with stuff like that.
  • mobil said on Jul 27, 2007....
    Moms, in life you do what you have to, seems to me you and yours are handling this pretty darn good. We can't control what others think, that's just the way it is.
  • mirrorimage said on Jul 28, 2007....
    d6: you know what's funny? I never realized how many people had issues of some sort until I had a sick child. I used to think you were basically 'guaranteed' a healthy baby... but that really isn't the case. I think now it is more common to have a child with some sort of issue than it is to have one without any.... it could be that i'm just more aware of it now or is it just getting to be more common?
     
    mobil: well, childrens services hasn't knocked on the door yet so I'm guessing burning my tires and flying out of the parking lot sideways worked....no one could get my license plate....LOL Just kidding... thank you though. You are right.... we can't control what others think. And I'm actually tickled with the way he has turned out. I can deal with a little shaking because one of his doctors scared the crap out of me by telling me he thought it was something else.... the other option was horrible.... I'm glad he did that... now I think I will be happy with whatever we have to deal with because at least it didn't end up being the other option!

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