inspiration2jms's tags:
Hi everyone, well I finished the steroid treatments and did not post about it as I did not want to tempt karma.  But I went 30 days without the skull crushing headaches.  As a matter of fact I have only had two headaches total.  Although they were not nearly as bad, they were still a bit worse than a migraine. 

Here is the REALLY good news.  I have not had a seizure in almost six weeks.  I hope this works.  I will have another series of shots and pills in another four months.  Keep praying for me.


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Comments

  • sweet_cookie01 said on May 16, 2007....
    i will and good luck... by the way what are you taking for your siezures?... i take neurontin (gabapentin) or lyrica.
  • secretlife said on May 16, 2007....
    are you on anti seizure meds or just the steroids?
     
    glad you're feeling better.
  • silverwhisper said on May 17, 2007....
    that's wonderful to hear! i will continue to keep you in my thoughts. :>

    ed
  • inspiration2jms said on May 17, 2007....
    sweet_cookie01;  I was taking the gabapentin but they took me off it because you can't take an anti-seizure medication with steroids I understand.  I haven't used an anti seizure for two 1/2 months now, (one of the reasons I am surprised).

    secretlife;  They don't want to put me back on the seizure medicine until after I do another round of steroids, but they will if I start having seizures again.

    ed;  Thanks, I can always depend on you.
  • inspiration2jms said on May 26, 2007....
    Well, I have not had any seizures but the headaches are back.  They are not as intense and they only last about 4 hours instead of days and weeks, but, I had so hoped that they were gone.  I am reapplying for disability so that I can get the further tests needed to determine the exact cause of the swelling.  But it looks like I will have to have another round of the steroids.
  • silverwhisper said on May 26, 2007....
    ugh...well, at least the headaches aren't as bad. :/

    ed

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