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First, this is a sad story, but I'd like to share it anyway. It helped shape the person I am today. And it might string a resonate note in your life. I know it has made me a better person.

 My twin boys were premature by 3 months. A week or two earlier and their survival rate would have been closer to zero than what the doctor gave me at their birth, which was 95% (astounding!). They were 1.5 lbs each at birth. If you've never seen a preemie of 1.5 lbs, you don't ever want to. They don't look human. Instead, they look like little aliens: thin, pink skin, long lanky limbs, huge eyes on a large head. Just not right. Not pretty, not cute, you can't even touch them. Their preemie diapers come up to their underarms.

Of course cesarean and the reason was that one of them had a broken water sack. The longer they remained in the womb, every day, bought them more time, a better survival rate. I was on a muscle relaxant for 9 days before their lives were jeopardized by remaining inside; then they were removed. I was both relieved and scared to death. Over my whole pregnancy, I only gained 10 pounds. I never even got stretch marks. I felt jipped on the whole pregnancy experience.

First, the cesarean was the worst experience ever. I could literally feel them tugging and pulling my uterus around. I wished they had knocked me out instead of just a local. Second, when they pulled them out, one minute apart, the one who had the broken water sack first, my husband was more interested in seeing them than consoling me. I felt so alone. They didn't even show me; they just whisked them out to the NICU.

I stayed in the hospital another 9 or 10 days after birth because I had developed a blood virus. Let me tell you, it was not fun. I had fevers, the chills, and no one to console me at night (when it was the worst). To top it all off, I had a breastfeeding nurse visiting me every few hours to be sure I was pumping -- hell, I was so sick, I fkn couldn’t! But she kept badgering! I felt like such a failure once I finally realized I could not harvest any breast milk. Of course, I cried.

Back to the story of my redhead. About 2 days after birth, he lost circulation in his left leg, and it turned purple and was pulled up towards the body. It looked broken, and very wrong. But somehow the circulation returned and it regained regular skin color, although it still looked broken and bent funny. Then, about 2 weeks after birth, he lost circulation in his left hand. At this time I was visiting the boys every day and had not missed a day until this one Saturday. When I saw them on Sunday, I was horrified by what I saw. I completely panicked. His fingers were completely black, and looked as brittle as twigs.

I called the nurse over and asked what was going on, and she said his fingers lost circulation (duh!) and that it might return. It happens all the time. But I knew. I knew it would not. I freaked. The nurse could not console me, couldn't say anything to help the matter, and I wasn't buying her story. I knew they were gone. They looked like they had frostbite, completely black, dead.

Upon leaving the hospital, I cried all the way home. I didn't just cry, I sobbed with my whole heart. I remember how sore my eyes were. I cried all that night. Nobody could say anything to console me. I KNEW!! I knew in my heart. They were gone, and no one at the hospital had the FUCKING balls to tell me that; I had to figure it out on my own. What cowards. I think that's what bothered me the most.

The next day, I decided I would not pity him, I would not treat him differently, would not think of him as handicapped. And to this day, there is nothing his brother can do that he can't. I'm sure it will happen, but he will compensate. He will always have a special place in my heart. I'm sorry for favoring one twin over the other, but it's so hard not to – can you fault me?




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Comments

  • wombat said on Dec 30, 2006....
    We are all here for one another.  Special is always for a reason.  Keep up the good work.
  • purrrkitten said on Dec 30, 2006....
    Oh my dear friend. How I wish I could have been there to console you. Perhaps you wouldn't have wanted me there tho. It's hard when things aren't going the way they should. You aren't a bad mother at all to favor your one little one a bit more. I understand. Just as long as you don't let on too much to the other that you do, there won't be any hard feelings. In fact, I'm betting that he favors his twin just as much.
     
    He's a special little guy and I can tell how much you love them both. I'm so very glad that they are doing so well now.
     
    I have seen those 1 LBers.... they are so small and fragile and helpless. How could a mother's instincts not kick in to see such a defenseless being that so desperately needs it's mother?
     
    I'm sending you a huge cyber hug.  (((((((((((twins))))))))))))
  • momsrock said on Dec 30, 2006....
    Someone should have told you....and given you a little support. I'm so sorry you had to do it on your own!
     
    I agree with purrrkitten...I'm sure he will have the protective instinct for his brother and favor him too! You can't feel guilty about one needing a little more care than the other. I think you would feel worse if you treated them the same or felt the same way and later realized you should have done more because of his circumstances. 
  • twinboyzmama said on Dec 30, 2006....
    Thanks. You know I'm not looking for sympathy, but your comments do help tremendously. Someday I will need to blog about my husband and where he was at this time, to put things a little more in perspective. That, too, is a sad story... in due time.

    Thanks wombat, PK and MR! BTW, moms do rock, huh? Seems women outnumber men on this site!
  • secretlife said on Dec 31, 2006....
    there really is no such thing as a natural birth......you just got an extra dose of unnatural....
     
    i find, that often doctors are cowards.  they don't like to tell bad news.
     
    i remember i had a sonogram during my 2nd pregnancy...it was at the doctor's office, and the baby was obviously dead.  but the doctor didn't want to tell me.  instead he sent me home with hope....have another sonogram at the hospital tomorrow...their machine is better.
     
    i was naive enough to believe him then...
    the next day, i realized he knew but didn't want to tell me in person.
     
    instead the technician called him on the phone, and he told me over the phone after the test.
     
    i switched doctors.  but that pain doesnt go away easily....
     
    you love your children......it's what mothers do.  to us, even in their imperfection, they are perfect.  and they are....each of them.
     
    i know you think somehow you are to blame.  but you aren't.  not really.
    we would only wish to have perfect babies....it's just we cannot control everything.  i believe that there are reasons that these things happen.  even if we don't see them or understand them.
     
    there is no blame.
     
     
     
     
     
  • gingersoul said on Dec 31, 2006....

    There is no such a thing like an imperfect child to a mother.

    You are not a bad person for being this protective of the one who needs you more. And it seems as you know this now...good for you.....your twins are lucky to have such a loving and caring mom.... bet they are handful...:-)

    Btw...on post that talks about babies yes, women will always outnumber men..its just that natural....lol...

  • peedee said on Dec 31, 2006....
    Hi!twinboyzmama, it reminds me of my daughter's son born premature.  She in fact was suffering from depression and it was her bold decision to continue with the pregnancy even after the death of her husband. On the fourth day when the child was treansferred from the ICU to the ward she was so afraid that she ran from the hospital and came home. Then I requested the Doctors to give me special permission in view of her mental condition  to stay in the female ward which was somehow granted. I took care of the child for a week and managed the discharge after a week. Thank God the child is now in the ninth year and studyin in the 4th grade. He has certain deficiencies but the we have to bear with patience and courage just like you. Wish tou all the b est and a very happy new year especially to the twin you love more.
  • Mamie said on Dec 31, 2006....
    sweetie, have you read your boys the book, "the crippled lamb" (I think by Max Lucado).It is so beautifully written and the lamb who believed he was crippled was "not", he was "chosen"...hope you know the story, it will comfort you, Here comes a hug!!!!!!!!! mamie
  • satyr said on Dec 31, 2006....
    Hi TBM, I think you'll get more comments from the ladies on posts about kids.....now when it comes to sex.....LOL!
     
    I hope you and yours have a wonderful 2007.
  • gingersoul said on Dec 31, 2006....

    Twinboyz...since Mamie is suggesting a book..i want contribute with this one...the title is " Whats wrong with Timmy" by Maria Shriver Kennedy (yes, Schwarzenegger's wife) and it talks about a girl asking her mom what is wrong with an handicapped boy in her classroom...and the answers that her mom gives her are comforting and wise...hope you can have some comfort too from them.....{{hugs}}...

    Hape a very Happy New Year......

    Satyr.....and you are the one complaining because we girls are alyways thinking about sex????...lol.....

  • twinboyzmama said on Dec 31, 2006....
    Thanks everyone for those wonderful words of encouragement. I will check out the two books mentioned by mamie and gingersoul (how did you come up with that name???). It's funny, kids are so unguarded and honest about his hand. They come right out and ask, and it's always the parent who tries to hush them up. He has the meat of his hand, all 5 metacarpals, and even a thumb nub which we call his "special thumb." When other kids ask about it, I tell him to show them his special thumb, which he proudly holds up and wiggles. We are seeing a hand specialist at Stanford, and he has already performed one operation ("web release," to increase separation between pointer finger and thumb to hopefully give him a "pincher." I tell ya, his brother is in trouble - it's a heck of a fist!

    I could go on and on, but won't. If you have specific questions, just ask away!

    Now about sex... I think Satyr owes us a good blog!

    I have a funny story about Victoria's Secret which I'll post later today. Thanks again everyone, hugs and kisses!!!
  • gingersoul said on Dec 31, 2006....

    Twin...the question about the name is for me or for Mamie?...:-)

  • twinboyzmama said on Dec 31, 2006....
    You gingersoul - i love it!
  • gingersoul said on Dec 31, 2006....

    Oh really? Thank you very much....:-)

    Well...ginger is a spice i like, and it makes me think of hot Arabian nights..lol...

    but "gingerly" means doing something with attention, being careful .....its also a name i found kind of spunky and fun...soul , well that was natural....and voila' .....

    Cant wait to read your blog on Victoria's Secret now......you got my curiosity, girl...{{hugs}}

      

  • mom said on Dec 31, 2006....
    That was a real tear jerker.  I think that most women can sympathize for what you went through. There is always fear for any woman that gets pregnant because we worry about the baby, but to be 3 months early I can only imagine what that would have been like.  I see the premie babies and think that God gives these mothers the extra faith to see them through. I am always amazed at their strength.
    As far as your favoring one more than the other, I think that is normal.  When you go through what you went through it is more natural to have that stronger bond.  It doesn't mean you love your other son any less.  Thank you for sharing your story. 

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