Well, the miriad of tests certainly gave my Doctor something to look and think about.
 
here we go:
 
I have Osteoperosis.  I'm 35 and have the bone density of a 60 yr old, he was amazed I hadn't broken any bones.  I have super D & Calcium tablets to take for the rest of my life along with a very unique dose of exercises to follow.
 
I also have Degenerative bone disease in C5 C6 and L6 & S1.  In other words, it will progress up my spine as I get older.  Errr... older? It seems my body is older than I am anyway go figure.
 
For pain relief I am being given low dossage Depression drugs that block the nerve signals in my spinal chord.  The alternative is Steroid injections in my lumbar, they can't do those in my neck or I'd be a vegetable. SO happy pills huh? could be a good idea considering how foul and low I've been feeling anyway.
 
I've been told to reduce my stress levels... ahh how exactly I do that I don't know, I'm a little bemused by it all right now.  I guess the good thing is that it isn't Fibromayalgia right? Supposedly my Doc said I won't end up a hunch back, but I may end up with a walking stick if I last as long as he thinks I will.  Meaning all my blood works are really good (yay I'm not an alcho after all), my platelets though are HUGE, what the fuck that means I don't fucking know, suposedly people with big blood cells have thiroid problems but mine is tickety boo!
 
I suppose you could say its managable, that its better than many of the alternatives... like I said I'm shocked with the Osteoperosis.  Now I gotta get my head around the exercises I am suppose to start and continue to do until I am placed under the earth or in a fire pit (dead).
 
I think I need a hug.


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Comments

  • Me-Myself&I said on Aug 27, 2009....
    ((((((((((((((((((((((((((((((((((((((((((((((HUG)))))))))))))))))))))))))))))))))))))))))))))))))
    and a
    X
     
    God bless you and keep you strong!!!!!
     
    i am sorry to read this my friend! :~(
  • woman said on Aug 27, 2009....
    Big hugs. Gentle hugs. For you Lucy Lu. That's a lot to digest and I agree, quite a surprise for a youngster like yourself. Once you get your mind around this and you get things calmed down with the meds and exercise, I think you will be able to accept this. Give yourself some time. As far as the stress, I don't know. Some stress seems to just be there and we have no control over it. We can adjust how we respond to it. Maybe that will be possible for you. All that said, I just hope you feel better very soon. Then everything will seem more doable. Good thoughts and much love, woman
  • Lucytorial said on Aug 27, 2009....
    MeMy ~ Its going to mean a few adjustments to my daily life but I am sure that I have got it early... well as early as one can.
     
    Woman ~ Doable... thats what hubby said, things will get doable when I feel more in control and happier and pain free.  Hopefully I can build some bone over the next two years and prove them all wrong about osteoP.
  • Hegemone said on Aug 27, 2009....
    Well, at least you now know what you're dealing with and can get right on track with it.  It'll come soon enough, I know you might struggle but I've also come to realize that you take care of things, you don't just wallow.  Oh yeah, and I always hate when doctors tell you to cut out the stress ... give me a lot of money, send me away and let me live the life of luxury and sure, I'll cut out the stress.  Sheesh.  ((((((((HUGS))))))))
  • Twylarants said on Aug 27, 2009....
    Take your pills, do your exercises, try not to stress so much, eat right, drink milk. 
    Here's a gentle hug....(((h u g))).
    I was diagnosed with this when I was 20-something and the dr said I'd be in a wheelchair in my 50s.  Well, poop on him!  I'm 60 and still walk 1 & 1/2 miles a day.
    My feet are killing me but my back is fine.
  • gingersoul said on Aug 27, 2009....
    It could have been so much worse, don't you think?

    Twylla is right......just do the right things and you will be fine.
  • CreativeWoman said on Aug 28, 2009....
    (((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))))))))))

    Don't you just love the word "manageable" when it comes to health matters?  I know.  I don't either.

    Hang in there, Lucy.

    CW
  • uniquely-ironic said on Aug 28, 2009....
    (((((((hugs))))))))))))
     
    Well, I'm shocked too.  I'd have never thought.  Does anyone in your family have osteo?  (not that it helps you now)
     
    Please be vigilant with the meds and exersize.  I plan to come back and haunt ... er .... visit you again and you'll need to be in top shape! ;)  I had never thought of using anti-depressants to block pain signals, but really, it sounds like a very cutting edge thought.
     
    I hope as these things kick in that you feel much better.  I know it's tiring just to be in pain and stressed.
     
    Have you considered bio-feedback for stress reduction?  I had a friend who used to do it and she swore that it was great.  It doesn't require any physical strength so it wouldn't stress your spine.
  • Lucytorial said on Aug 28, 2009....
    Hege ~ LOL I agree, give me enough money and I should be stress free te he he
     
    Twirly ~ REALLY! Wow, okay so I'll take the med and do the exercises - walking, swimming, and a type of yoga as well.  That really rocks you know.
     
    Ginger ~ It definitely could have been, I actually feel better for knowing exactly what it is, now I can take right action.
     
    CW ~ Managable... hmm I don't like that word, I like action, doing, making things happen, Like Twirly I want to prove the poop heads wrong.
     
    Uni ~ Very shocked but I spoke with my mom and she says all the women on her side of the family had it, Nan, Great gran, Auntie's (3) and my great Nan.. didn't even realise!
     
    As for the anti D's being used as pain blockers that was a surprise but they say in low dosages its better than pain meds.  I see it as a little break for my mind so I can find fourth gear and get going again (you get that?)
     
    Thanks for all the hugs, I spent last night talking to hubby andmaking plans, an action plan I suppose.  Now the hard work starts I guess.
  • wombat said on Aug 28, 2009....

    Oh Luce...sorry for the diagnosis, but you are a strong one and I have faith in you to keep up with what you need to do to ward off this thing.  I know you have a long row to hoe here and I wish I could offer more than just a hug.  Ok.... I can.  A hug and a prayer.

    {{{{{{{{{{{{{{{{{{{{here's the hug part}}}}}}}}}}}}}}}}}}

  • wishyouwerehere said on Aug 28, 2009....
    Great big hugs and hooray for Juicy Lucy!
     
    Weight bearing exercises, love - and lots of them - for the osteoporosis.  Keep taking those vitamins and minerals, and did he say anything at all about physical therapy?  I bet they could help whip you into shape, missy!
     
    So glad you are going to be just fine - still keeping you in my prayers for good measure.
     
    Love, Wishy
  • speaking_up said on Aug 28, 2009....
    With all due respect please allow me to shake my head in amazement at the diseases doctors will hand out their brain drugs to (anti-depressants).   It's like a candy store of choices doctors pick to dish out on just about any ailment.
     
    I wish you all the best but am not holding my breath that anti-depressants will stop or hold up anything...depression.
     
     
  • speaking_up said on Aug 28, 2009....
    included...
  • wishyouwerehere said on Aug 29, 2009....
    There is a definite neurophysiologic basis for the use of anti-depressants to modulate chronic pain.  It helps regulate the amounts of transmitter required to conduct the pain signals from the site of the injury to the site of conscious awareness in the brain.  I am not sure whether or not it will help you, Luce, but there is definitely a solid rationale behind the doctor's recommendation.  Do your research, of course, just to make sure the potential benefits outweigh any risk or side effect, but don't be put off just by the fact that these medications have a certain label or are typically used to treat mental conditions.  The science is definitely there for use as an analgesic.
     
    Huggies - Wish
  • Twylarants said on Aug 29, 2009....
    I agree with Wishy.  The fear of the disease and the fear of pain from the disease just makes the pain worse.  Anxiety and stress don't cure anything.
  • Lucytorial said on Aug 29, 2009....
    Wombie ~ Hugs appreciated.

    Speaking up ~ Perhaps your should do a little research yourself on these anti depressans and how they are used, that being said thanks Wishy!
     
    The generaly give depressants 3 to 4 pills a day, for pain relief they say to only take one a day, I am starting on a half as I know my system is sensative.  I am only on them for 1 month to help gain some muscle strength and give my brain a chance to try a knew way of seeing pain.
     
    Twirly ~ That is why he is trying me on them, a little break from it to give me a chance to re start my body and brain signals. In other words, get fit (ter), get stronger and that means mentally as well.
  • speaking_up said on Aug 30, 2009....
    Lucy...oh my, research into anti-depressants>??....i've  done a tad, read my blog, especially in the beginning...my bottom line is anti-depressants are handed out like candy, for every disease a woman could possibly have, and I am SPEAKING UP about the crime of it all.
     
    No harm...just my input.
  • steppenwolf68 said on Aug 31, 2009....
    Lucy! I was so shocked at this post that I coldn't even comment. Here I just got back from a couple of wonderful, relaxing weeks in Denmark; look into SC for the first time in weeks, mostly to see what Moon or Ginger might be up to.... for some reason I looked at your post! But now, a day or two later and late late nite, first you get a great big, comforting bear hug, a gentle one, from over the ocean. Next, I just heard on AFN that lifiting weights increases bone density. And don't sell alternative medicine short. Here in Germany the "Kasse" will often pay for acupuncture! Get well, Lucy, forget the psycho pills. Just concentrate on getting well so we can read happy things from you in the future.....
  • Lucytorial said on Sep 01, 2009....
    Steppenwolf ~ Hey there... glad you had a wonderful break.  I've got specific weight bearing exercises to do, along with other yoga stretches and baancing ones.
     
    Accupunture is top of the list as far as I'm concerned... no more drugs.  Thanks for stopping in and commenting.
  • steppenwolf68 said on Sep 02, 2009....
    Lucy, ok. Now I feel better. Your condition really brought me down. Love your tone. You know, research has shown that optimists have a much better prognosis when ill!
    I had a friend in the U. from Iceland who could do amaizing things with his body, ie his neck! He said he gained the elasticity because  broke his neck while playing as a kid and had to spend 2 years in the hospital. To keep himself fit, retain elasticity and bone density they had him do yogi! Super.!!!
    I believe you will handle this. I will be following your progress and wish you all the very, very best Ciao...
  • Lucytorial said on Sep 02, 2009....
    :-} Optomism is my middle name... blindly so sometimes.  Yoga is very good in core muscle strength so that I use more core muscle than back muscle... I could even get a sic pack if I do it for a while te he he
  • steppenwolf68 said on Sep 02, 2009....
    Lucy, great to hear your optomism is not shaken. You certainly know mor than me about these things. I'm sure you will be all right. You'll be on my good vibes list.... that just might help.... :)
  • ReaLargo said on Sep 03, 2009....
    Ill give you a soft hug to start with :P  , sorry to hear about that, im quite young and ive broken a few times and im like 6'7 i hope i dont get that or ill be all fucked up.The taking pills thing and the excercises will become rutine and you wont even have to think about it.
  • Twylarants said on Sep 03, 2009....
    I never made the connection between strength training and managing this condition because I forgot about it over the years, (brittle bones? What the hell is that?) but the work I did caused me to become "freakishly strong for a girl", as some butchers put it...lol.
    When I broke my foot in 2001, the dr looked at the xray and asked what I did to break it. I honestly didn't know it was broken, I just thought I bruised it stepping off a pile of newspapers in work.  He said it was fractured right across the top, but it had many healed fractures all over it, even in my toes.  Who knew?
    Both feet were xrayed last year when I was diagnosed with plantar facsiitis and the dr said, "Good grief! How many times have you broken your feet?"
    So I guess all the heavy lifting I'd done working all those years in the meat room made my other bones stronger but my poor feet took all the abuse.
  • Lucytorial said on Sep 03, 2009....
    Twirly ~ You could get a transplant... te he hehe knew feet? I'm betting that I'll be fine, I'm seeing an occupational therapist in the next week.  She's going to help me sort out exactly what to and no to do.
     
    Real ~ Don't besorry, its not sympathy I'm looking for, I guess sharing a realisation of why I've been off, feeling unwell. Thank you for the hug though

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