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I got up this morning after a very restless night.I kept on thinking to  mysef - what if they got it wrong.What if the cut a nerve instead of scar tissue ? Where would I be then.I would probably have to move out of the house.My mother in law has said that she would have me back in a heart beat - its her birthday today - 64 years old.I wondered would I ever reach that age.I have plans to still be here at 100.
I know that I should be looking at the positive aspects of this.Hell,if i wasnt - i would have been a basket case long ago.I thought back to my Dad's admission at the barbeque a couple of months back,that they knew about it.but they didnt say anything,cos they didnt want to wrap me up i cotton wool.
I hated him for that,at that time.But maybe it hindsight it was the right thing to do.After all,I was living a perfectly happy life up until a year ago.I want that life back.
I used to get up in the mon\rning and take the day head on,and not let any physical drawback get in my way.
I still do that -the only difference is that i am second guessing everything and thinking twice before I do it.I dont want to do that anymore.
Maybe thats the point of the operation
I know the doctors know what they aer doing - so why should I doubt them.
Thats the thing though - i dont doubt them
As much as I  have been  having a stiff upper lip about all this and trying to find some humor in it.
Maybe I am starting to doubt myself - only time will tell.


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Comments

  • secretlife said on Jul 08, 2008....
    how can you not think of all of these things when you have such a serious decision in front of you?  i can't think of a way around that.
  • polarheart said on Jul 08, 2008....
    Cuppa, I have only started reading blogs again now.  Is this in the past or the present?  I hope that you are ok!
     
    Polar x
  • cuppajava said on Jul 08, 2008....
    Hi Secret - its like everything else i guess - only i can make the decision now.The only problem is that the hospital cannot and will not give me any guarantees.i am not asking them for any - just a little guidance on what to expect afterwards.
    They dont even want to give me that - cos they wont know until they open me up,and by then it may be too late
    I dont really know anymore
    Hi Polar - hope you are feeling better
    This is maybe the last one on this topic
    You should maybe read my last 4 or five - from  the one titled 'the shunt is on the move' I am faced with a big decision about a surgical operation that could change my life - permanently
    I am not sure what to do.
    Help?
    CJ
    X
  • Lucytorial said on Jul 08, 2008....

    CJ ~ I wasn't sure how to approach this one so I read back over your posts... for all you have been through with your life there does shine through one thing in you that may help you.

    Regardless of all the bumps and hurdles you have a very stble and solid perspective on life.  Should you undergo this radical treatment and the outcome be not what you want do you think that your eternal spirit will in the end help you through? its a simple but deep question, its a HUGE thing to undergo with many ifs so the only thing I can see as being yor safety line is yourself, that thing that defines you as a person.  A lovely person.  I'm sorry to hear this has come to a point that yo need to do something.  I cannot fathom or imagine the magnitude of it.

  • cuppajava said on Jul 08, 2008....
    Hi Lucy - I thank you for the compliment and the fact that you have taken the time to come along and comment on my post,as I know that you have your own set of medically related issues to deal with.
    I know that the only person who can do anything about this whole thing is me.
    I have been to see 2 different neurosurgeons,in 2 different hospitals - the government hospital where i am being treated are saying that the operation should only be as a last resort when i cannot manage the condition anymore - or when I become incontinent( this is one of the side effects of the condition) where bladder control is lost completely,and you have hyper reflexia.
    But the only problem that i have with that is that,the operation will not reverse any of that - it will just stop it from getting worse - if there is no hiccups along the way.
    So my philosophy is - by the time they do the op,it is going to be too late anyway - so why put my self through all that additional discomfort.
    the neuro at the private hospital has a very different view of things - he said to me straight - you have 70% quality of life at the moment -at your age now - 37 - if you have the op to correct the spine,it wont reverse anything,but you will at least have a quality of life for the next 5 years that you have never had before.You are still 'young' enough to be able to recover in a matter of months and get back on your feet again,and enjoy life.
    So,you see - i am stuck between a rock and a very hard place at the moment,as i see the sense in both of them.The forst ones idea being - you can still walk and talk and are responding to the medication - so why try and fix something if its not altogether broken yet.
    I'm like evryone else - i wish i had this crystal ball to look into the future ans see whats going to happen in about 15 years time.
  • Lucytorial said on Jul 08, 2008....

    Man, thats pretty difficult in itself.  I haven't been through anything similar but my husband has.  He had non hodkins lymphoma stage 3, his choice was to maintain quality of life with chemo (yep sure) or try a very new stem cell transplant.  At the time the odds of him coming through that were less than 50/50 which seems strange when chemo would have kept him a live and err sick! anyway, they said the same thing, "you are young enough to be able to cope with this, later in life your odds get slimmer.

    He took the risk and it paid off.  I'm not trying to say anything here about your decision, thats totally yours, I wish you luck in making it though with a clear mind and a self awareness that may give you the opportunity to see a little further down the track than next year maybe.


    Not easy and I am surprised by your outlook and the way in which you are approaching the whole thing, very mature CJ.

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