So yesterday was my date at the hospital – that’s all it was – a date.

Its all it ever really is – the reason why I say this, is that nothing ever really changes from one visit to the next

But I knew that the day would be different – I was going to force them into making a decision as to what to do with me. I had become quite tired of what they had been doing to me all these months. Regularly filling me up with medication that was supposed to help me, but all it was really doing was putting off the inevitable.

They had been stalling on doing the operation for too long. It had gotten to the stage where the medication had stopped having the necessary effect that it was supposed to have .Well, having said that – it still did the job – but the tabs decided to take the day off every now and again .I was only originally supposed to go back in September – as the head of neurology had decided on my last visit in march that ‘there wasn’t enough wrong with me’ to risk doing the operation.

Well thanks very much I thought to my self. I was really disheartened after my last visit ,and had asked my self if the gravity of the condition had finally gotten to me.

But I thought I was stronger than that – I thought I was more stubborn than this.

I had lived with spina bifida all my life. I had survived through a lot of things, which I maybe shouldn’t have.But that was before i knew about tethered Cord syndrome

It’s the kind of a situation where someone who has cancer and goes for chemo, for over a year – and is finally cured on the last attempt of treatment.

Feeling elated at the prospect of a new life, and getting their life back again………….they walk out of the hospital to cross the street, where there family awaits them with open arms……………but they fail to look both ways before crossing the street…………..and are knocked over and killed by and on coming bus.