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I'll accept that there are things beyond my understanding, but I just don't know how to stop asking questions.
 
One of my dear friends told me today that I think too much.  I know I do - short of knocking myself unconscious, tell me how to stop doing it.
 
I was called on a consult today for a small child - ordinarily, I stay away from pediatrics.  It is way too heart wrenching for me, and I have a great deal of difficulty leaving those emotions at work.  I went to see the most beautiful little boy. He is about 3 years old.  He will never speak, or move or even eat on his own.  Weaning him from the ventilator was a small miracle in itself.  He has minimal awareness and responsiveness.  He hardly shows any activity, let alone purposeful movement, but his eyes are absolutely amazing, and his little lips were set just like a cherub.  I could easily understand how his parents fell in love with him.
 
I did the consult and left feeling grossly inadequate, trying to console myself with the thought that I might have lessened his suffering, although the longterm impact is probably neglible.
 
I have a hard enough time finding purpose in my own life, so god only knows why I am so consumed by asking this as well.  Where is the purpose in this small person's life?  Is it to remind the rest of us how truly fortunate and blessed we are ... to shame us with perspective and distract us from our own relatively minor struggles?  I don't know.
 
What is the purpose of suffering?  How can you place a value judgment on it - this little baby surely hasn't committed some offense or made choices that resulted in his state in life.  Sometimes, people think the suffering is there to teach a lesson.  From a practical standpoint, best I can determine, this child has no capacity to learn.  As for me, the only lesson I learned today was a selfish one - I am still not cut out to treat children. 
 
I'm rambling a bit - I am at a loss to express my emotions coherently.  I am haunted by the prospect of this child's pain and discomfort, the burden of living with incurable disability, the strain on the parents ... what is the reason behind it?
 
How do you release the questions you cannot answer? 
 
 
 
 


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Comments

  • vacantmind said on Apr 29, 2008....

    I don't really have a good answer for you.  I meet this boy when I was doing chemo that had been battling cancer since he was two. He was frail and small for his age. Didn't smile often...just seemed unhappy. As adults we get to make choices about our care. Children have to trust their parents and when they don't think they can handle anymore...we have a tendency to push them a little bit further. I'm not sure it is fair. I understand the reasoning and the difficulty of letting go of that child. Now, this little boy lost his fight earlier this year. He would have turned six this year. I wondered was his life something that he would have enjoyed or was it something his parents couldn't give up on? What did his suffering do?

    Yep, more questions that have no answer!

  • lfbno7 said on Apr 29, 2008....
    I think we eventually do find out the answers.
  • mobil said on Apr 29, 2008....
    This is some very difficult stuff you are dealing with emotionally Wishy. What I've learned over the years is that I can't make everything ok for everyone. We are here to do the best we can and to enjoy this good life God has given to us.
     
    You are young, we  have to gain a certain amount of toughness to our interior and we  have to help those less fortunate, but we can't live with that sourness in our gut. It's not possible to remain healthy in the long term and do that.
     
    I have also learned that my shoulders are not broad enough to cure all the worlds problem, this is why I pray. All of this can be troubling, you will need to sort your way through it.........all my best and God Bless
  • wishyouwerehere said on Apr 29, 2008....
    Vacant - I sometimes think that we are so afraid to die that we have no idea when it is ok to let go ... it is even harder for children.  Working in health care has taught me that there are things worse than death.  That is why I have a health care proxy.  I want to be able to say when, even if I cannot speak for myself.
     
    LFB - Yes, I think that one day we will understand.  I am just impatient.
     
    Mobil - I really hope I never become sour, but I also hope I can gain some of that toughness you are talking about.  As for being "young", I am about to hit the big 4-0 this year.  Sometimes, I still feel like a baby, and sometimes I feel like I am beyond the grave!  ;)
     
    I spent a whole lot of time praying today, and it did bring peace, but I am still so exhausted from pondering stuff that should probably be left alone.
     
    Seeing this baby hurting this way really did a number on me, and I feel guilty, cause I was only there for about 25 minutes and his mom and dad deal with it all the time.  I wanted so much to be able to make it better.  Maybe that's just ego.  I have a hard time accepting when there isn't anything left to do.
     
     
  • secretlife said on Apr 29, 2008....
    there aren't any answers......and i think you already know that.  no answers in this life.
     
    if you believe in God, then you have to also trust that He knows the plan.
     
    there's really nothing harder than watching a child suffer.
    i cannot image doing it for a living.  i know i'm not cut out for it, and could barely manage while my own baby was ill.  i know i'll never forget the things i saw then- i know what i learned is that no matter how bad you think you might have it, someone else has it worse....i know i learned that we really do need to count our blessings-
     
    i think that little boy is a blessing to his parents.
    it might not be possible for you to see beyond his limitations.  but i bet for them, they see the love he's brought into their lives as a gift.
     
    the people who live across the street from me have a 17 yr old boy who was a near drowning victim at 18 months.  what they were all left with is a child who is severely handicapped-  he will never speak, feed himself, walk.....
    but i never once, in the 6 years i've known them and their other 4 children EVER heard anyone speak of dino as anything other than a blessing. 
     
    it's perspective.
    we accept what we can't understand.
    boy, that accepting is really really hard.  i don't think i'll ever master it myself.
  • wishyouwerehere said on Apr 29, 2008....
    Secret - One look at his beautiful little face, and I could see why his parents would see him as a gift.  I also saw it as a gift and a blessing in that it put my own complaints in perspective, but at the same time, it hurt so bad knowing this is a permanent state for him.
     
    I find myself consumed by questions lately, and frustrated that I cannot let go of them, or accept that there are no answers.  Maybe it is all the changes, maybe it's a midlife crisis kind of thing.  Maybe it's just a chracter flaw, who knows?
  • CreativeWoman said on Apr 29, 2008....
    My niece died from an accident at the age of 8.  I have often wondered what her purpose was and how she accomplished it in 8 short years.  She was a talented artist and already a published poet.  I wonder what she would have been had she lived longer.

    She lived in a town of 4,000 people.  There were 400 at her funeral and at least that many at the candlelight vigil.  That's 10% of her hometown's population.  That smiling little girl touched many in her short life.  If she loved you, you knew it.

    I would have traded places with her in a heartbeat so she could have lived a longer life.

    It's really hard to figure out the why sometimes.  Like secret said, somehow you have to accept it and carry on.  There's an inner strength you tap into that you didn't know you had. 

    The child you speak of has touched you deeply.  I'll say a little prayer for him.

    CW


  • wishyouwerehere said on Apr 29, 2008....
    CW - I am sorry to hear about your niece.  That is quite a statement about the impact of her short life.  She was a blessing - and maybe this little boy's purpose is to be a blessing, also, pure and simple.  I have been thinking about this all day and will probably continue to mull for a while, but when you get right down to it, isn't that our highest calling, to bless one another with remembrance of life's precious gifts?
  • mandikern said on Apr 29, 2008....
    i love this blog
  • wishyouwerehere said on Apr 29, 2008....
    TY Mandikern  - there are good people here, and I enjoy their thoughts.
  • hotaka said on Apr 30, 2008....
    Last year I wrote a post about a similar concern. I saw a small girl on the train with a mutilated face on one side only. The other side was perfectly cute. Even at such a young age her life had already taken shape in that it would be difficult for her to find a boyfriend (though once she found someone he would surely be worth it for loving her for who she is), and I wondered when her friends reached the age to put on make up would she jump in the fray as well or just say it wasn't for her? I couldn't see what good the disfigurement would serve. I think sometimes you have to say either there are some questions we can't answer with a purpose because God only knows or we have to say that things just happen and the only purpose to them is whatever we can make of it.
  • wishyouwerehere said on Apr 30, 2008....
    Hotaka -  Very well said - thank you for sharing your perspective on this "I think sometimes you have to say either there are some questions we can't answer with a purpose because God only knows or we have to say that things just happen and the only purpose to them is whatever we can make of it."
  • Fire-flower said on Apr 30, 2008....
    I can't say for sure, but maybe the little boy is the Teacher, and giving his parents an opportunity to learn selfless love. Pain by itself is useless, but suffering has meaning. Sometimes the prompt you get to ask the questions is of value in itself, even without the answer. The answer comes eventually - I've found things that were inexplicably horrible and meaningless at the time have turned into the greatest gifts over the years. Btw I'm 43, and hitting 40 was the best thing that ever happened to me. I flaunt my age. You're still a young thing!
  • wishyouwerehere said on Apr 30, 2008....
    Fire - what an important, beautiful purpose.  I will hold on to this, as well as the implicit value of the question itself, even when the answer is elusive.
     
    And yeah - I am actually looking forward to 40 in a way, more than I am dreading it.  Seems like a good place to start a new chapter of this story!
  • Fire-flower said on Apr 30, 2008....
    I'm glad I could I could add something worthwhile. And yeah - the 40 thing - it's a total liberation. I wouldn't be 20 again for anything on earth. I've learned a lot over the years, and at least I know I still have a lot more to learn. When you are young you think you know it all. Embrace it - you get to start over with a lot more wisdom....I think women need to stop fearing the physical aspects of aging, and learn to appreciate the value of the wisdom which comes with age. I finally learned that 'NO' was a complete sentence, and no justification was necessary - what a relief that was.
    Btw  One of your greatest strengths, as a physician, and a human-being, is your compassion, and the fact you can still feel for your patients is what makes you remarkable. I know some doctors who disengage from their patients to protect themselves - and in the process they lose some of their soul. ((((((((HUGS)))))))))))
  • wishyouwerehere said on Apr 30, 2008....
    Thank you flower - I am not a physician.  I am a physical therapist, and the human element is the greatest reward of my profession.  I absolutely love what I do, and I feel very blessed by that.
  • Fire-flower said on Apr 30, 2008....
    So this means that, unlike a physician, you can't medicate or bury your mistakes:) But seriously, I think the compassion thing applies across the board in health care. It's great that you love what you do - that really is a blessing. Take care...
  • iamshay said on May 04, 2008....
    hi wish=> your post serves  purpose to everyone. Life is a mystery.
    It creates an impact to the readers how compassionate you are.
    and I agree there are a lot of good people in SC =) 
  • wishyouwerehere said on May 04, 2008....
    Hi Shay - nice to see you.  Thank you for stopping by ... yes, life is a mystery.  I don't know why I feel so compelled to find all the answers, even when I know they aren't there.

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