skald's tags:

After my singing lesson today I visited mum. I always do. The first thing I did was to put a kind of plastic protector over my shoes so I don’t wet the floors in the home.

 

This time this thing got wet inside and I was in a puddle of water. Although I had tried to get the snow off the soles of my shoes, I was completely wet through.

 

I came into mum’s room and there she was, trying to put shoes on her feet. Her coat was on the bed. I had to get something to dry the floor with. I had wet it. Of course I had to take my shoes off. Then I wanted helped mum get into her good new indoor shoes again. The one's my son Beggi got her for Christmas.

 

But I could not do that at once. It was not so easy. She had one of the indoors shoes on and an outdoor shoe. I could not find her other shoe anywhere.

 

She hides everything. That is a part of her illness. I looked in all drawers and the closet. To no avail. Then I looked at the window and there was her shoe on the windowsill. 

 

She had been going out when I came. Of course she dose not go out alone anymore. She said she was going to a shoemaker. Then it was a shoe shop . I told her she had plenty of shoes but she forgot it and was going within a minutes period.

 

She also said she needed coffee. She had to go out and buy a pack of coffee. I told her she got everything at the home that they gave her food and coffee but she forgot that also and kept talking about it.

 

She was not completely happy. I felt like I just wanted to go, run out,  but I stayed of course. The best thing was when she saw someone walking by. Every one that went by was my aunt and we talked about what my aunt was doing.

 

It is no fun seeing once mother deteriorating like this

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Comments

  • botoni said on Jan 24, 2008....
    Skald, you have all my sympathy. In the past I ve worked with elderly people who were in a similiar state to your mom. At best its heart wrenching. Be sure to remember that this is caused by her illness and that she isnt doing any of it purposefully. Your patience is amazing to me.
  • uniquely-ironic said on Jan 24, 2008....
    This must be hard for you.  You are such a good daughter to go visit when she is in such a state that it becomes frustrating to you.  I would guess that she was a very good mother to you growing up, so now you feel it is only right to be there for her as she ages.
  • queenparanoia said on Jan 24, 2008....
    skald: i really feel sad because i know how love your mum very much... all i could say is hold on... hold on my dear skald...
  • wombat said on Jan 24, 2008....
    I just commented on another post about taking care of the elderly--and I should sort of expand on that.  When I said that not everyone had what it takes to take care of someone this way, I meant myself included.  I think it's wonderful that you are able to do this for your mom even though it may be harder on some days to keep on with the daily struggles.  My mom is far from me now, but will soon need care like this.  I am not there, and not sure if I could be as patient as you are if I were.  She is on the fringes of Alzeimer's I can tell when I talk with her on the phone.  It is sad and frustrating, and I know it must be for you even more so.
  • MissMimi said on Jan 24, 2008....

    {{{{{{skald}}}}}}  I admire you so much for the way you are devoted to your mum when I know it cannot be easy a lot of the time. 

    My mother-in-law has alzheimer's, and we are just starting to travel down the road you're on.  I can see that it is a difficult one. 

    You're a very special person, skald.  Hugs

  • quietone said on Jan 24, 2008....
    skald ~ {{{{{hugs}}}}} oh, it is so hard, yes.  But you manage to be a very good loving daughter daily.  When I worked in a nursing home, I saw how this disease affected the family as well as the patient.  It is not easy to watch.  Some days are better than others, and of course, she does not know her state of mind, which is good.
  • secretlife said on Jan 24, 2008....
    i know.  it's so hard. i know just how you feel when you get that quick flashing thought that you just want to RUN......ESCAPE......never look back again.
     
    it only lasts a couple of seconds, then of course you remember there's really no escaping....
     
    it's so sad what you've got to go thru skald.  it takes great strength and greater love to do it day after day....
     
    i wish i could hold your hand and tell you i know what you're going thru. and know how much it wears on your heart and soul.
    rest......the only advice i have is to rest so you can build up your strength for tomorrow. 
     
     
  • skald said on Jan 24, 2008....
    Botoni.  It delights me to see  you here. Thank you for your words. You know how much appreciate you.
    Uniquely. She was the best mum in the world in my eyes. She could not do anything wrong. If she had I would not have noticed.
    Queen.  Yes I will hold on. Thanks
    Wombat.  It is just as sad and frustrating for you. Thank you. Knowing that she is on the fringe of Alzheimer that hurts.
    MissMimi.  I am so sorry about your mother in law. It is a difficult road, many things the same for people but some different.
    Quiet.  My dear friend. Yes this affects the whole family you are right. And I think the people who work in those places are so special. They do much more than they are asked to do, many of them. I think we forget them very often. Like a girl named Maria from the Philippines she hugs mum and even me every time she sees us. She dances around and gives us a feeling of joy. Thanks god for such people.
    Secret.  The thought was to go, run but come back later. Thank you I know you would hold my hand and make me feel better. But must of the time I am joyful. God gave me that kind of a temperament. The temperament to want to do things and get on. I am so thankful for your words and everybody's words here.
     

  • pickersplock said on Jan 24, 2008....
    It's wonderful that your Mom has such a great daughter to care for her!
  • polarheart said on Jan 24, 2008....
    Skald, you are dedicated to your mother and I am sure that once in a while you will feel this way.  You are only human and sometimes we want things to be they use to be.  I am so sorry for this difficult time that you experienced today I hope that in the days to come you will receive renewed strength.
     
    Much love, Polar
  • the_infernal_optimist said on Jan 24, 2008....
    ((hugs))

    That has to be so difficult, skald. My thoughts are with you as you deal with this, and I know your mom is grateful for your loving attention, even when it's very hard for you to be there and see her that way.

    ~Infernal
  • skald said on Jan 24, 2008....
    Pickers. Thanks so much.  Hope you are feeling well.
    Polar.  Thanks Polar. There are days like this and I did not want to sound like I was complaining. This is what people with parents or love ones who have Alzheimer are going through all over the world. Much love too.
    Infernal.  Yes my mum really likes to get my visits. Thanks so much for your words. ((((Hugs))))
  • Me-Myself&I said on Jan 24, 2008....

    in your last post i felt your sadness and worry over your mum. yes it is very hard and fill of mixed emotions when a person watches someone they love gets ill.

    i wish you strength and comfort in the days to come. (hug)

    you are a wonderful person who has much love in their heart and shares it to one and all. you don't run into many folks that is like that too! i'm proud to say that i have the honor of knowing such a person... you! *smile*

  • skald said on Jan 24, 2008....
    MMI. Dear Me. I am just an usual woman but thank you. I can also feel that you are a warm and nice person. It is always good to know people like that. Luv 
  • skald said on Jan 24, 2008....
    MMI. Dear me. I am just an usual woman but thank you. It is also good to know you. I can feel that you are warm and caring and it is always good to know people like you. 
  • rupert7 said on Jan 24, 2008....
    skald - it must be so hard to see your mum like this.Its not her fault and I know you know this.When you were little your mum looked after you.Now,sadly,the time has come when your mum needs the care she gave you.You are a good daughter and are seeing to it that your mum is cared for in the right way.She is lucky to have a daughter such as you! I hope someone looks after me as well when I get old. (((hug)))
  • skald said on Jan 24, 2008....
    Rupe. Thanks and ((((Hug)))) I Also hope some one looks after me. Those things are not certain but we do what we have to do and as I am an only child there is no one else to do it. Still I would take care of mum if I had siblings but then i might sometimes get time off. 
  • rupert7 said on Jan 24, 2008....
    skald -  I know of people who have put their parent in a home and then NEVER gone to see them, and that is terrible. You are  such a good daughter but we all need a break,a rest. Is there no one that do that for you? Just for a little while?
  • FutureGoddess said on Jan 24, 2008....

    Skald - you have every right to feel that way!  And I am sure that it won't be the last time either.  Like Rupe said, take a break, take a breather and then you will be able to continue.  Is there anyone else, sisters, brothers, grandchildren who can take over one day for a visit?  That would probably help as well.

    you are a wonderful daughter!

  • Lioness said on Jan 24, 2008....
    skald, I understand the pain of seeing your mom that way and feeling helpless. She's just lucky she has a daughter like you. Patience is a virtue.
  • sweet_cookie01 said on Jan 24, 2008....
    Skald i cant say that I know what you mean but I understand how difficult it is. I love my mom the way you love yours and I think because of that I can feel the pain and frustration that you are feeling.
     
    Hugs for you dear... I wish someday when I grow old my daughter will be as loving and caring as you!
  • josay1103 said on Jan 24, 2008....

    Skald - I can relate to what you're going through right now. My grandmother stayed with us untill she died. She was always sick, I remember it was almost every month that we took her to a hospital. It was very tiring to us. It was really us who changed her diapers, made her bed and gave her a bath. Looking back on it now makes me happy. I feel that we had really showed our love and care to her. I also feel that I am confident that when I grow old somebody will also take care of me the way I took care of grandma.

    I understand how hard it is for you but be more patient.

  • 4lorac said on Jan 24, 2008....
    Gosh...so many memories, its a been there done that kind of thing for me. i had the "run aways" going through my head many times, through both of my parents end days..monthes, years.. I had many times where they had to go through all of my sibs names before they landed on me...(other sibs too busy of course to be bothered). You stay, simply because its mom, or its dad, and they were there for you when you were the dependant one, its the role reversal at its finest. the child becomes the keeper so to speak. Gosh, I give you all the hugs in the world, I wouldnt go through it again for any price..twice was enuff.
     
  • crybabylu said on Jan 24, 2008....

    I know because I am going thru the same thing with my mom.  Only she has passed this stage much time ago, we are lucky if she says anything.  I would give anything to have the conversation with my mom you just had with yours.

    Hope that doesn't make you feel bad.  I just miss hearing her voice.  LOL, dee

  • runningbear said on Jan 25, 2008....
    skald - I'm sorry you are going through this. Maybe next time you see her,  it will go better.
  • Quna said on Jan 25, 2008....

    It must be so hard and painful... What you wrote, makes me understand how much you love her, and the more you love someone, harderit is to see her in state like this.

    What can I say, BE STRONG!

  • skald said on Jan 25, 2008....
    Rupert. There is no one there.Thanks so much for you warm words.
    Future.  I am an only child. My grandchildren are small and I take care of them every weekend two stay over and have for years. The oldest one in 9 years old. Thanks so much.
    Lioness.  I do appreciate your words.
    Sweet.  I have missed you. It is so good to see you around. I know you love your mum and that you understand this, that way. Thank you. I know your daughter will be there for you.
    Josey. Yes this was hard on you and I am glad for you that you did it. I have been taking care of mum for years. I am an only child and I took care of dad until he died. He was in and out of hospitals and I was driving him there or to doctors. Mum always came with me and her troubles were beginning. It was not helping. when my dad died over 4 years ago they released him out of hospital 8 days before. Only to be put into the emergency ward on the same weekend and never coming back from hospital. At that time I had my  mother in my home for months before dad died. I took care of everything my self. At that time I also had my 2 little grandchildren here all the time at least from Friday until Sunday evening. For 10 years I had been having all kind of difficulties because of a sick son and all kind of happenings. I had to fight to get mum a prober care. She went home because she wanted to and at first she got day care twice a week . She liked it there it was not enough. I was driving her 3 times a week to my uncles and having her on weekends as well as the kids. She got one more day and it was a relieve but after she came home at 4 there were all kinds of problems. She going out again, falling  loosing a key, or I was woken up at night to take her to the emergency ward.even if she only had a bleeding nose. I got her to a home where she could stay only 16 months because her Alzheimer got worse. I was at that time as always going to doctors with her taking her there and there and 3 times a week taking her to visit uncles. Then in October she came to this nursing home and I am and have always been patient.
    4lorac.  I understand that this was difficult for you. Thank you so much for your warm words. See what I wrote above for Josey if you want to know more about this. luv
    Cry.  Thanks so much. No, it does not surprise me that your mother could not speak any more but I am sorry. I know I went through it with grandma. She sat in a chair without being able to speak and later she just lay in bed because she could not do anything. This is the last stage of the decease.
    Bear.  I go every day and today she might be different. I only wrote this because this is a decease that should be talked about. I like to tell people how it is for the loved ones and so many know it and go through the same thing.
    Quana.  I am glad that you could read that out of my words. Thank you so much.
  • MrDarcy~RayUK said on Jan 25, 2008....
    I watched my grandmother deteriorate I can feel your pain skald, I have felt it.
    I am sorry you have to go through this.
    ~R
  • Carlar95 said on Jan 25, 2008....
    Hugs, Skald. I wish you a good weekend. I can imagine how hard.
  • skald said on Jan 25, 2008....
    MrDarcy. I like your user name. Thank you. Yes it was the same with my beloved granny too. She had the same decease but Alzheimer was not generally known then and we did not know what was happening at first. I watched her to the last stage and until she died.
    Carla.  I wish you and your daughter a good week end too. Is she with you on weekends? Thank you Carla. 
  • evil_twin said on Jan 25, 2008....
    I can only imagine how hard this is for you. I think that this one of the most devastating illnesses for the families of the people suffering from it. It must be very painful to see your mother that way. I think that you are doing a wonderful job taking care of her. And if it gets hard on you sometimes, I think that's only natural. Try and hang in there.

    -evil_twin LA
  • skald said on Jan 25, 2008....
    Kyle. Thanks there is one thing which is harder and that is when one looses their kids into drug addition with all that goes with it. Thank you very much again. 
  • Mamie said on Jan 25, 2008....
    hiya Skald, you are an angel and yours is a work of love. I know it is hard to watch, but your love for your mum and hers for you is a lot bigger and will live forever despite what the physical limitations become. I hope you can just play along in her stories so that she feels settled and you both feel okay. Sending a hug your way.....xxxooo ,Mamie
  • skald said on Jan 25, 2008....
    Mamie.  I like to talk about the past with her and when she asks what her mum is doing I say that she is cooking. playing the harmonium and singing and so on. thanks. 
  • Eilan said on Jan 25, 2008....
    My mom's an only child and (mostly) the sole caregiver for my grandma. She's 85 and still mentally lucid, but she is legally blind and has a lot of trouble getting around. Her blood disorder will eventually kill her.

    It's so hard to see the ones we love slowly decline. *hug*
  • skald said on Jan 25, 2008....
    Eilan.  Hugs to you and give my best to your mum. I know how hard this is for her. Thank you so much for telling me. 
  • dailyachesandpains said on Jan 25, 2008....

    {{{{{{{{{{{{SKALD}}}}}}}}}}}}}}}}

    I'm so sorry.  This has to hurt you so much in so many ways.  I have you and your family in my heart.

    {{{HUGS}}}

    Daily

  • skald said on Jan 25, 2008....
    Daily.  I am always so glad to see you. Luv (((((Hugs))))))

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